Tuesday, February 5, 2019
Life Got A Little Messy
Much to my dismay, a few bites later I strung another long hair through my teeth. Okay, this is starting to get a little ridiculous. Two long hairs in one container of salsa?!? It was frustrating. But being an ultra runner has taught me to be determined. I don’t give up when things get hard. So I set that second hair aside and continued eating. Just because it’s hairy salsa doesn’t make it any less delicious. And then catastrophy struck. A third hair.
A four letter word probably popped out of my mouth. I grabbed the container of salsa and threw it in the garbage. I was livid. I mentioned this frustration to my wife later that night. While I was relating my story, my daughter piped up with a confession. She had been eating salsa earlier in the day and accidentally dropped the container of salsa onto the carpet. Not wanting to waste the salsa, she scooped it off the carpet and back into the container, then put it back in the fridge.
Needless to say, I didn’t need to floss my teeth that night.
Right now, my life is like that container of furry salsa. It is really great. Really great. But there are a few unexpected hairs in the mix. Those hairs are called Common Variable Immunodeficiency Disorder. A few months ago I found out that my body has a glitch. Basically my immune system works as well as a Close Door button in an elevator…which is to say: not at all.
This isn’t great news. My primary care doctor seemed genuinely concerned and sympathetic when these results showed up in my blood work. Apparently this sets me up for some potentially serious health issues including pneumonia, bronchitis, and pulmonary infections. Since then there has been more blood work. More doctor appointments. And a few visits with an immunologist. I don’t dig the kind of diagnosis that shows up on the National Institutes of Health list of Rare Diseases.
The only option for treatment is immunoglobulin infusions. The immunoglobulin is from people who have donated plasma, and this is supposed to help build up my immune system. The doctor said that these infusions will be needed for the rest of my life. The options I was given were to 1) Do subcutaneous infusions once a week at home, or 2) Do IV infusions at an infusion center once a month.
I selected option #1. Here’s the problem with all this nonsense: I’m terrified of needles. To me, needles are scarier than snakes, truck stop bathrooms, and Celine Dion music…combined! I have a bad reputation of passing out when I get my blood drawn. So the idea of needle sticks weekly for the rest of my life is super unawesome.
I had my first infusion two weeks ago. A nurse showed up, put three needles in my stomach, then an hour and a half later the infusion was done. The next day I tried to jog a mile, but couldn’t because my stomach hurt too bad. The day after that I tried to jog again. No go.
Last week Mel did the infusion. Three needles in my upper thigh. Ugh. 70 minutes later it was done. As Mel was taking the needles out, my world started getting fuzzy. As darkness started clouding my vision, I slapped my cheek trying to keep from passing out. Mel said “Hurry, let’s walk to the couch so you can lay down.” I knew I couldn’t make it that far. I was suddenly dripping sweat and ripped my shirt off. I barely made it to the dining room floor, clammy and sweating. But I didn’t completely pass out. WIN!
I tell you all this because I’ve been thinking about how life isn’t always 100% awesome. (Duh!) I tell you this because you can’t have a story of triumph without overcoming something. Here’s the thing: I don’t know if there even WILL be any overcoming! I want to run the Jackpot Ultra Marathon in two weeks with Mel who is going for her first 100 miler. I want to run every mile with her. I want to run the Zion 100 in April. I want to run the Vol State 500k in July. But I’d be lying if I said I didn’t have any doubts. These hairs in the salsa are making things a little trickier.
Of course the priority is to take care of myself. Don’t worry. I’ll do that. Health is more important than a buckle. Maybe ultra running has prepared me for this point in my life. Ultramarathons have taught me to be strong and brave and determined. And now I’m at this moment where I can utilize those tools in a real life setting. I’ve never been one to back down from a challenge. Now is the time to fight.
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You've got this! Prayer headed your way!
ReplyDeleteI gagged at the hair part, but I am very impressed by the cleanliness of your tile floor. I’m rooting for you and always will. Lots of love, Emmy
ReplyDeleteHeaven knows, I’ve had some seriously hairy salsa. I can say this definitively: Ultra running has prepared you for this. And even if you can’t run distance right now, you are still training. You’ve got this, Mr Reese. It sucks all the balls, but you’ve got this.
ReplyDeletePraying for you Cory Reese, you will forever inspire others in everything you do! ð
ReplyDeleteSorry you're going through all this, Cory. I hope in time you'll settle into a rhythm that will still allow you to pursue all of your big ultra dreams. You're definitely more prepared that many would be.
ReplyDeleteLIfe threw a monkey wrench at me 2 years ago when I was diagnosed with rheumatoid arthritis. It took me a while to figure out my new normal but I'm still out there running (slower) and doing my thing. You will too. Hang in there, Cory. You got this.
ReplyDeleteStill trying to get on top of my autoimmune disease and the past 4 years have not been easy. Hoping it goes well for you Cory and you don't skip a beat!
ReplyDeleteSorry to hear you have this going on :-( :-( :-(
ReplyDeleteHopefully you can be the best cheer squad ever for Mel & then go from there. 2019 might be the year of volunteering for you. Loved your last book. If anyone can work through this you can!!! X
Sending lots of prayers and good vibes your way! I've loved and been really inspired by your books and all your photos/posts on FB. Hang in there and stay strong!!
ReplyDeleteHi Cory! You are such an inspiration to me. I read your first book two years ago when I was recovering from my most recent round of Lyme Disease treatment (needles and infusions!). I decided I wanted to run an ultra and have been working toward it ever since (made it to 30K so far). Having this goal has helped me focus on all the things I am capable of doing despite my disease. It might take me longer than most, but that’s okay. Your book made me feel like I wasn’t alone. I hope you know you’re not alone either! Thank you for your wonderfully positive attitude and outlook and for sharing your journey!
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āļĨืāļĄāđāļāđāļĨāļĒāļ§่āļēāđāļื่āļāļāļ§āļēāļĄāđāļิāļāļāļēāļāđāļāđāļĨ้āļ§āļ็āļāļ§āļēāļĄāļĢāļ°āļึāļāđāļāļี่āđāļĄ่āļāļĒู่āļัāļāļี่āļāļ°āļ่āļāđāļŦ้āļุāļāļāļĢึāļāđāļāļุāļāļāļĢāļēāļ§āļāļģāļāļ§āļēāļĄāđāļ้āļēāđāļāļŠāļĨ็āļāļāļ่āļāļāļāļ°āļāļāļāļัāļāļŦāļēāđāļāļŠิ่āļāļี่āđāļŦāļĄāļēāļ°āļŠāļĄāļี่āļŠุāļāđāļ็āļāļิāļ§āļāļāļĢ์āļีāļĒ์āļāļēāļŠิāđāļāļāļāļāđāļĨāļ์āļŠāļģāļŦāļĢัāļ āļĢāļēāļāļ§ัāļĨāļŠāļĨ็āļāļāļĄัāļāđāļ็āļāļŠิ่āļāļāļģāđāļ็āļāļี่āļāļ°āļĢู้āđāļĢื่āļāļāļŠāļĨ็āļāļāđāļĨāļ°āļ็ āđāļĄ่āđāļŦāļĄืāļāļāļัāļ āļĢāļ°āļŦāļ§่āļēāļ āļāļ§āļēāļĄāđāļāļĢิāļāļĢุ่āļāđāļĢืāļāļ āļĢāļ§āļĄāļั้āļ āļāļĢāļĢāļĄāļāļē āļ่āļāļāļั้āļāļู่āļāļāļāļāļ°āļāļĨ้āļēāļĒāļāļĨึāļāļัāļ āđāļĄ่āđāļŦāļĄืāļāļāļัāļāļี่āļŠāļģāļัāļāđāļ็āļāļāļēāļĢāļāļģāļĢāļ°āđāļิāļāļŠูāļāļŠุāļ āļ้āļ§āļĒāļŠāļĨ็āļāļāđāļāļĢāđāļāļĢāļŠāļีāļ āđāļ็āļāđāļีāļĒāļāļāļāļāļāļ°āļĄāļēāļāļึ้āļāđāļĄื่āļāđāļāļ็āļāļēāļĄāđāļĨ่āļāđāļāļĄ āđāļĄื่āļāļู้āđāļĨ่āļāļูāļāđāļ็āļāđāļีāļĒāļāļāļāļ āļĄัāļāļāļ° āļĢีāđāļ็āļ āđāļ็āļāļāļĢิāļĄāļēāļāđāļĄāļĨ็āļāļัāļāļุ์āļี่āļāļģāļŦāļāļāđāļ§้āļĨ่āļ§āļāļŦāļ้āļēāļŠิ่āļāļี่āđāļ้āđāļāļĢีāļĒāļāļŦāļĨัāļāļāļāļāļŠāļĨ็āļāļāđāļāļĢāđāļāļĢāļŠāļีāļāđāļ็āļāļู้āđāļĨ่āļāļŠāļēāļĄāļēāļĢāļ āļāļāļ°āđāļิāļāļĢāļēāļāļ§ัāļĨāļัāļāļĨ้āļēāļāđāļ้ āļ้āļāļ้āļāļĒāđāļ็āļāļāļēāļĢ āļāļģāļĢāļ°āđāļิāļāļāļēāļāļีāļāļēāļāļ่āļģ āđāļĄื่āļāđāļีāļĒāļāļัāļāļŠāļĨ็āļāļāļāļĢāļĢāļĄāļāļēāļ āļēāļĒāļŦāļĨัāļāļĢีāđāļ็āļāļāļĢิāļĄāļēāļāđāļĢิ่āļĄāļ่āļāļāļี่āļāļ°āđāļ็āļāļāļāđāļีāļĒāļāļāļāļ°āđāļĢิ่āļĄāļĄāļēāļāļึ้āļāļีāļĨāļ°āđāļĨ็āļāļีāļĨāļ°āļ้āļāļĒāļŦāļāđāļĢāļāļี่āļŠāļĨ็āļāļāđāļāļĢāđāļāļĢāļŠāļีāļāđāļ็āļāđāļĄ็āļāļี่āļāļĨāļāļāļāđāļāļāļāļāļāļู้āđāļĨ่āļāļŠāļēāļĄāļēāļĢāļāļี่āļ่āļģāđāļ็āļāļāļĢิāļĄāļēāļāļĢ้āļāļĒāļĨāļ° 85 āđāļāļāļēāļāļ°āļี่āđāļ็āļāļāļēāļĢāļĄāļēāļāļึ้āļāļāļāļāļāļēāļĢāļāļģāļĢāļ°āđāļิāļāļŠāļģāļŦāļĢัāļāđāļāļāļēāļĢāļĄāļēāļāļึ้āļāđāļĄื่āļāđāļāļ็āļāļēāļĄāļĄีāļāļēāļĢāđāļĨ่āļ, āļāļĨāļāļāļāđāļāļ āđāļāļ่āļēāļāļŦāļĨัāļāļāļē āđāļāļĒāđāļāļāļēāļ°āđāļāđāļĢื่āļāļāļี่āđāļ็āļāļāļāļāļีāļāļģāļāļ§āļāļŠูāļāļĄāļēāļāļĄāļēāļĒāļู้āđāļĨ่āļāļāļāļ āļิāļāļāļēāļĄāļĢāļēāļāļ§ัāļĨāđāļāļิāļ§āļāļāļĢ์āļีāļĒ์āļāļāļĢั่āļĄāļāļēāļŠิāđāļāļāļāļāđāļĨāļ์ āļุāļāļĒัāļāļŠāļēāļĄāļēāļĢāļāļāļĢāļ§āļāļāļēāļāļāļģāđāļŦāļ่āļāđāļ็āļāļāļāļāļāļāđāļ§็āļāļāļēāļŠิāđāļāļ่āļēāļāđāđāļ้āļāļิāļāļāļāļāļŠāļĨ็āļāļāđāļĄ่āđāļ่āđāļĢื่āļāļāđāļāļĨāļāļี่āļāļēāļŠิāđāļāļāļāļāļāļĒุāļāđāļŦāļĄ่āļāļ°āļĄีāđāļāļĢื่āļāļāļŠāļĨ็āļāļāļŦāļĨāļēāļĒāļัāđāļāļĢื่āļāļ āļāļēāļŠิāđāļāļี่āđāļ้āļี่āļิāļāđāļāļāļี่āđāļāļāļāļ°āļี้āđāļāļĄāļŦāļēāļŠāļĄุāļāļĢāđāļāļāđāļĨāļāļิāļāļŠิāļีāđāļ็āļāđāļāļāļĢāļีāļี่āđāļี่āļĒāļ§āđāļื่āļāļ āđāļ่āđāļĄื่āļāđāļāļ็āļāļēāļĄāļี่āļāļēāļŠิāđāļāļāļāļāļāđāļ้āļĢัāļāļāļēāļĢāļāļĒāļēāļĒāļัāļ§ āļŠāļĨ็āļāļāđāļ็āļāđāļāļĄāđāļĢāļāļี่āļāļ°āđāļิ่āļĄāđāļ้āļēāļĄāļēāļāļēāļŠิāđāļāļāļāļāđāļĨāļ์āđāļĄ่āļĄีāļāļĢิāļĄāļēāļāļŠāļĨ็āļāļāđāļāļĨ้āđāļีāļĒāļāļัāļāļāļēāļŠิāđāļāļāļēāļāļāļ āļāļēāļŠิāđāļāļāļāļāđāļĨāļ์ NJ āļāļģāļāļ§āļāļĄāļēāļāļĄีāļĄāļēāļāļĒิ่āļāļāļ§่āļē 200 āļ่āļāļāđāļĨāļ°āđāļĄ่āļี่āļี่āļĄีāļĄāļēāļāļĒิ่āļāļāļ§่āļē 300āļ่āļāļ āļี่āđāļ็āļāļัāļ§āđāļĨืāļāļāļี่āđāļŦāļ่āļāļāļี่āļāļ°āļ่āļāđāļŦ้āļู้āđāļĨ่āļāļāļģāļāļ§āļāđāļĄ่āļ้āļāļĒ āđāļāļĒāđāļāļāļēāļ°āļāļāļี่āļāļēāļāļีāļāļēāļāļĒัāļāđāļŦāļĄ่āļ่āļāļāļēāļĢāđāļิāļĄāļัāļāļāļāļāđāļĨāļ์āđāļāđāļĄืāļāļāļิāļ§āļāļāļĢ์āļีāļĒ์ āļāļāļĄāļēāļāļัāļāđāļāļĄāļี่āļāļ°āđāļĨ่āļāļĄีāļŦāļĨāļēāļĒāđāļāļ§āļāļēāļāļึ่āļāļŠāļēāļĄāļēāļĢāļāļัāļāļāļĢāļ°āđāļ āļāļŠāļĨ็āļāļāđāļ้ āļāļēāļิāđāļ่āļ āļāļēāļĄāļีāļĄāļĢāļ§āļĄāļั้āļāļāļĢิāļĄāļēāļāļ่āļāļāļāļģāļĢāļ°āđāļิāļ āļāļēāļŠิāđāļāļŦāļĨāļēāļĒāļี่āļĒัāļāļĄีāļŦāļĄāļ§āļāļิāđāļĻāļĐāļŠāļģāļŦāļĢัāļāļŠāļĨ็āļāļāđāļŦāļĄ่ āļŠāļĨ็āļāļāđāļ่āļ āļŠāļĨ็āļāļāļี่āđāļ้āļĢัāļāļāļ§āļēāļĄāļิāļĒāļĄ āđāļĨāļ°āļ็āļŠāļĨ็āļāļāļĒāļāļāļŪิāļāļāļĒ่āļēāļāđāļĢāļ็āļีāļ่āļāļāļั้āļāļāļ§āļāļื้āļāļāļāļāļĒู่āđāļāļāļ§āļāļāļāļāļ่āļāļ 3 āļĢีāļĨāļŦāļĢืāļ5 āļĢีāļĨāļ§ิāļีāđāļāļŠāļĨ็āļāļJOKER123 āļŦāļĄāļ§āļāļŦāļĨัāļāļĨāļģāļัāļāļี่āļŠāļēāļĄāļĄีāļŠāļĨ็āļāļāđāļ็āļāļāļāļāđāļāļāđāļāļĢāđāļāļĢāļŠāļีāļ āļึ่āļāļŠ่āļ§āļāļĄāļēāļāđāļ็āļāļāļģāļāļ§āļāļ§ิāļีāđāļ 5 āļĢีāļĨāļŠāļĨ็āļāļ 3 āļĢีāļĨāļ่āļāļ 3 āļĢีāļĨ āļāļēāļāļāļĢั้āļāļāļēāļāļāļĢāļēāļ§āđāļĢีāļĒāļāļ§่āļēāļ่āļāļāļāļĨāļēāļŠāļŠิāļ āļŠิ่āļāļāļ§āļāļี้ āļัāļāļāļ§āļāđāļŦ้āļĢāļ°āļĨึāļāļึāļāđāļāļĢื่āļāļāļŠāļĨ็āļāļāđāļāļŠāļĄัāļĒāđāļĢāļ āļĄีāļŠāļēāļĄāļ§āļāļĨ้āļ (āļĄāļēāļāļĒิ่āļāļāļ§่āļēāļŦ้āļē)
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